2019 International Vasculitis Symposium
July 19-21, 2019
Hyatt-Regency
3200 E. 81st Street, Bloomington, Minneapolis  55425

Join us for the 2019 International Vasculitis Symposium.  This 3-day conference, held every other  year, brings together people living with vasculitis, their families, vasculitis medical experts, and other healthcare professionals.  There will be general sessions for all attendees, special Q&A breakout sessions for smaller groups, and panel discussions.


All ages are welcome to attend the symposium. This year we are organizing some special groups by age and interest.
Pediatric Patients (17 and under) and Their Parents/Guardians
Teenagers (13-17)
College and Early Career (ages 18-24)
Careers and Families (ages 25-35)
Caregivers and Managing Families

Register Today!
Regular Registration Fee: $240/person April 1 – July 13, 2019
Pre-registration is required!  Click here to register online.

Scholarships:  A limited # of scholarships for registration and travel expenses are available.  Please email the VF office for an application.  The deadline for submitting an application is June 7, 2019.


Symposium Headquarters:
Hyatt-Regency (next to the Mall of America)
3200 E. 81st Street, Bloomington, Minnesota
Room rate:  Single/Double: $125 +taxes; Triple: $145 +taxes; Quad: $155 +taxes
Room block closes June 25, 2019 or as soon as block is filled
Reserve: Call 800.233.1234 or Click here to reserve online:  Group code:  G-VASC


Preliminary Schedule – sessions may move around depending on speakers’ travel schedules

Friday, July 19, 2019
11 am – 9 pm Information and Registration Desk Open ( please note, pre-registration is required; deadline July 13, 2019
1 pm – 1:45 pm Welcome and Let’s Symposium! General Session for all Attendees
Special Presentation:  What Got You Here, Won’t Get You There!
2 pm – 2:45 pm Breakout Session #1 (choose one session to attend)

    • Vasculitis 101: For the Newly Diagnosed Patient and Their Families
    • Vasculitis 201: What’s New for Me?
    • Parents and Their Pediatric Patients (patient ages 17 and under)
    • College and Early Career (ages 18-24 years)
3 pm – 3:45 pm Breakout Session #2 (choose one session to attend)

  • Individual Disease Sessions – groups will be divided by the different forms of vasculitis for short presentations   and Q&A
  • Parents and Pediatric Patients’ session continues
4 pm – 4:45 pm Breakout Session #3 (choose one session to attend)

  • Parents of Pediatric Patients only
  • Pediatric Patients Session only (ages 17 and under)
  • Careers and Families (ages 25-35)
  • Journaling Your Way to Better Health
  • Yoga in the Park (weather-depending) or indoors
4:45 pm – 6:45 pm Free Time!  Dinner on your own or with your individual disease group
The Mall of America has many different restaurants to choose from.
7:00 pm Dessert Welcome Reception
Keynote Address
Saturday, July 20, 2019
7 am – 8 am Continental Breakfast
8 am – 10:45 am General Session for all Attendees
Welcome and Introductions

  • Monitoring Disease Activity
  • The Role of Genetics in Vasculitis and the Environmental Questions Everyone Asks
  • The Role of Microbiome Research in Vasculitis
  • The Science Behind Health Eating/Heart Healthy/Anti-Inflammatory Diets/Supplements
  • Medications for Patients with Vasculitis
11:15 am – Noon Breakout Session #1 (choose one session to attend)

  • The Science Behind CBD Oil
  • Eye Involvement in Vasculitis
  • Symptom Tracking
  • Prednisone—The Good, the Bad, the Ugly
  • Dermatology/Skin Involvement in Vasculitis
12 noon – 1 pm Lunch
1 pm – 1:45 pm Breakout Session #2 (choose one session to attend)

  • CBD Oil Panel Discussion and Q&A
  • Ear/Nose/Throat Involvement
  • Bone Health
2 pm – 2:45 pm Breakout Session #3 (choose one session to attend)

  • Lung Involvement in Vasculitis
  • Neuropathy/Pain Management with Nerve Damage;
  • Stress Management
  • Prednisone–The Good, the Bad, the Ugly (offered a second time)
  • Fertility and Pregnancy Concerns and Update on VPREG
3 pm – 3:45 pm Breakout Session #4 (choose one session to attend)

  • Kidney Involvement in Vasculitis
  • Career and Family (25-35)
  • Is it Time for Disability?
  • Adding Exercise to your Management of Vasculitis
  • Basic Health Policy – Insurance Programs
4 pm – 4:45 pm Breakout Session #5 (choose one session to attend)

  • Caring for the Caregivers (for parents of children with vasculitis)
  • Caring for the Caregivers (for working spouses/partners of patients with vasculitis)
  • Caring for the Caregiver (for retired caregivers of patients with vasculitis)
  • Social Media Engagement – Best Management Practices
  • College and Early Career (ages 18-25) and Career and Family (ages 25-35)
  • Yoga in the Park (weather-depending) or indoors
6 pm Banquet and Entertainment Program
 
Sunday, July 21, 2019  
7:15 – 8 am Yoga in the Park (weather-permitting) or indoors
7:30 am – 8:30 am
8 am – 8:30 am
Continental Breakfast

VF 2019 Annual Membership Meeting and Election of Directors

 

8:30 am – 11:45 am General Session for all the Attendees

  • Mindfulness–The Research and the Practice
  • Remission: How to Get There and Stay There
  • Research Advances Funded by the VF
  • Translational Vasculitis Research at the National Institutes of Health
  • 2019 International Vasculitis & ANCA Workshop Report–What Does the Future Hold?
11:45 am – 12 noon Wrap-Up and Goodbye

 


The Hyatt-Regency is near many family-friendly activities! Plan to  attend the symposium and enjoy a family vacation!

Mall of America
1.1 mile away:  It’s a quintessential mall experience you will not find anywhere else. Discover one of the theme parks and various attractions, like Nickelodeon Universe, LEGO, and the Minnesota Children’s Museum. Enjoy Rick Bronson’s House of Comedy, “Minnesota’s home for laughs.”

Sea Life Minnesota Aquarium 
1.5 mile away:  Home to thousands of aquatic creatures, Sea Life Minnesota Aquarium is located inside the Mall of America and is a must-see. The largest underground aquarium in the world invites you to get up close with a vast array of underwater creatures.

Science Museum of Minnesota
12.5 miles away:  The Science Museum of Minnesota offers a hands-on approach to science learning and entertainment. It features the Experiment Gallery, an Egyptian mummy, an authentic Mississippi River towboat, a convertible-dome Omnitheater and interactive exhibits for all ages!